Impatiently, I refresh the screen, tapping my foot, jiggling the mouse with my hand. Come on, come on, come on. A few days ago, I sent Riley’s doctor a message on the patient portal, a few questions about upcoming labs and potential patterns. Sometimes parenting a child with epilepsy, especially while adjusting meds, feels like […]

Caught up in the morning whoosh, I rush to the car, balancing my bag, my water, my phone.  I call out the usual things, looking forward but tossing the words behind me, a list of rapid-fire questions each beginning with “Do you have your….”  Adam walks out close behind me, lightly slinging his backpack over […]

For them, this was a game.  For me, this was a lesson in trust. “So, see, what you want to do is collect four queens from the middle,” Zoe says, gesturing expansively toward the center of the table.  “If you get the Rose Queen, that’s very good, because you can immediately draw an additional queen.” Adam […]

In like a breeze after school they come, swift and rattling the edges of things, scattering papers and shoes and the crumpled wrappers from their lunches.  Riley’s cheeks bloom pink with the exhilaration of arrival, as though they’ve been far away and flying and have only just landed home, in from some place now only […]