“So Adam, what did you do at school today?” The question, admittedly, feels familiar and worn, like a knob on an oft-opened and oft-slammed door, one we open today like every other day, honestly anticipating nothing save blank space. And for how long, I wonder, sitting here wearing my end-of-the-day weariness like grave clothes, can […]

In our many hours of learning, we learn how to pray. I pass out empty index cards because my children, who find it hard to function without discernment of the edges, need discrete lines, spaces they can see in which to realize and organize real hopes into real petitions. The moments to consider, to plan, […]

In the late afternoon, having satisfied my heart on sweet conversation, I convince myself to take our mother-daughter mugs–empty now, but still warm in my hands–to the sink. But in that pregnant moment between the decision and my middle-aged groan, Riley squeezes into the chair beside me. It’s a chair and a half, but there […]

In the garage, on the way in at the end of a bruised up day, Riley has another seizure.  Kevin, coming around the other side of the car, sees her stop, notices her sudden silence.  He calls her name, and she turns her head but can’t answer. Stuck, her head bobs, like something sinister has […]

I remember sitting at a too short Formica table, overflowing a child-sized chair, in the play area where a couple of bright, shiny women evaluated my then two-year-old Riley. Riley, distractedly pushing platinum corkscrew curls away from her eyes, lined chunky animals along a busy, primary carpet in a long, snaking line. It looked like […]

My friend and I, we walk, and I tell her about Riley’s last seizure, the words tumbling from my mouth in a rush. The story’s only hours old; it happened the night before, so this is how I’m doing. My friend listens intently, nodding a little in encouragement when I look at her, gasping in […]

Early morning, thick dark, and I switch on a lamp, like a lantern burning through a dead fog. Greedily, I sip my coffee, steam curling around my chin, and I wonder how to begin. I feel pulled, yanked even, and this morning, I’m digging in my heels. I really don’t want to do this week. […]

Rushing out of one appointment and late to another, I discover the text: Riley had a seizure. And in one second flat, I feel as though some vile bully just ran by and pushed me off my careful balance, and that even with my angry, road-scratched palms, I am somehow responsible for the world.  Alone.  […]

The sky, like the soft skin of a plum, ripens from the bottom, hinting at some sweet, fleshy truth beyond its careful covering.  I rock back and forth in a rocker on the porch, relishing the chance to savor the change, wondering how it would be to peel back that top layer of rich cloud.  […]

To look at her, you’d not think her mighty, carrying that slice of notebook paper folded over her fingers, brassy hair tied in two smooth knots and pinned, finally, against her head and away from her face.  She insists upon nothing in her eyes when she’s about her business, checking off important things in a […]