Especially on Friday mornings, we feel the flat, sharp, immovable borders of our own built-in human limitations, and we groan, searching blindly for a Godly perspective. I’ve come to understand that this is the battle, although on the surface it looks, more practically, like Riley stumbling through our open garage door with teary eyes, her […]

As Kevin and I sit down at the bar to eat our salads, Adam suddenly announces, “word choice practice,” as though it’s a track and field event and we have just found our seats in the bleachers to watch. I’ve noticed that he likes to have at least one witness for this process, which has […]

On the Fridays when Josh spends the day with us, Riley, Josh, and I have conversations about what they’ll do for each other in-case-of-seizure.  They sit at the bar, our couple, their fingers interlaced, while I stand in front of them at the kitchen sink, my hands preoccupied with washing. “Now Josh,” I begin.  He […]

“Are you Adam’s mom?” Our young friend Becky asks me, lightly fingering a little-girl hairclip at the side of her head, looking up at me with wide, quiet eyes of fathomless blue.  I feel touched by the hint of wonder in her expression. Becky must be in the third grade.  I had watched earlier as […]

When I open the email about Adam’s blood work, I have just finished telling the Lord that I don’t understand why everything always has to be so hard.  I know that everything and always are sweeping, emotional words, but God is a sweeping, omniscient God who doesn’t need me to “pretty up” my feelings.  I’ve […]

I pray with Riley at night. After she brushes her teeth, she comes to get me, shows up beside my bed like she used to as a child, and I lay aside my book and pull my body back out of bed and slow step my way across the hall to her room.  Sometimes I […]

At the water park, we wait in a sunny line on a meandering sidewalk bordered by honeysuckle just past the bloom, holding our rafts, rafts that will soon take us down a waterslide.  As a group, we exude anticipation, a chattering hope spurred on by the whooping sounds of delight we’ve heard all along our […]

I stand on my tiptoes a little now to brush Adam’s teeth, reminding myself not to hum aloud the thread of praise weaving through my thoughts because Adam will feel as though, while he’s already telling me it’s time to finish with his teeth, he must also ask me to stop humming, please, because the […]

“I’m concerned about Adam’s schedule for the summer,” Riley says to me, folding her hands in front of her and digging one toe into the outdoor carpet on our back porch. The hinges of the door haven’t yet stopped screeching, and a great wind rustles the leaves of the trees, and I take a deep […]

In our house, we have learned to keep time this way, in days since the last seizure, but this is not something we carry along, not at all like some battered suitcase stuffed with all our worries and dragged along behind, but rather something acknowledged and touched by our hands and burned in the pasture, […]