Riley sits at the bar, fresh-faced and bright, if still a little rumpled with sleep. She looks like Spring, like the first day of sapphire skies; like new flowers with blushing, velvet leaves; like anticipation; like hope sitting right there on a bench in my kitchen., and it’s striking to me because it’s the opposite […]

This morning, I feel the outer crumbling, how slowly I waste away–not me, but the shell of me; the me you would recognize; the me you could touch, at least while we’re here. A cellular avalanche starts the moment our bodies begin to breathe; but breathe God and the opposite happens too. The resurrected body, […]

As soon as Kevin leaves the room, Riley slips through the open door and flops on the sofa beside me, hairbrush in one hand, all that hair still dark wet and snarled, swinging against her back and scattering droplets. Immediately I notice her red-rimmed eyes, but choose not to say anything at first, carefully sliding […]

Early, while the sky’s still grey, Riley comes downstairs, slowly, like always. From my chair in the living room, from the place where I sit still dark and curled, I can hear the fall of her feet. Her knees crack, an inherited weakness, as she plants herself on each step, and for a moment I […]

“So Adam, what did you do at school today?” The question, admittedly, feels familiar and worn, like a knob on an oft-opened and oft-slammed door, one we open today like every other day, honestly anticipating nothing save blank space. And for how long, I wonder, sitting here wearing my end-of-the-day weariness like grave clothes, can […]

Five minutes before we leave for school, I come down to check on Riley. Before I left the room in search of a shower, while she attended to what-I-don’t-know upstairs, I prepared for leaving at the right time, filling in steps I know otherwise will take her too long. I collected her morning pills (yes, […]

We can’t be sure when Adam first realized he had forgotten the wireless controller for his insulin pump, whether it occurred to him as he stood outside the door at school at the end of the day or only after he had climbed in the car to go home, or if he didn’t know until […]

I don’t know her name–not the sound of her voice, not even the shape of her smile. As it is these days, because of the mask she wears, her eyes—dark and determined and locked on mine–are all I know of her, those eyes and that hair, curling dark around her head in short, wild corkscrews. […]

It starts as a joke, Kevin drawing Adam back after we finish cleaning the kitchen and Adam starts the nightly pilgrimage to his sanctum sanctorum; Kevin asking Adam to give all the things Adam is withholding–a hug, a backscratch, a bit of lingering attention. Adam endures, but only with perfunctory investment–the hug, light and limp, […]

“Adam, give me a good word,” Kevin says at dinner, grinning down the table at our son, who, having said his amen, has turned his shaggy head toward the food in front of him. The question presents a risk: Adam believes no is a pretty good word. Somewhat reluctantly, Adam half raises his glance toward […]