Restoration fills our talk of home. Kevin and I never finish the conversation. We watch Riley pause in every doorway whispering some memorized OCD monologue, bending at the waist like a bobblehead doll, and Kevin says to me, “One day, she’s going to fly through doorways.” Adam stumbles over answering a simple question, searches his […]

“It’s so pretty out here,” I say, the words like an exhale. Golden brown leaves skitter across the asphalt, and everywhere I look I see another vibrant shade–the sky, cool blue; the trees, a sunset arch sheltering our pathway. I breathe a prayer, remembering something C.S. Lewis said, something that fits: We do not want […]

Riley can’t respond to me when she’s seizing. She can’t answer my gentle pleas for her to come back, though she tries to turn her head toward me and gets locked there, looking back over her left shoulder, eyes seeing nowhere and then straining beyond even me. I glance at the clock, marking the time, […]

Early, while the sky’s still grey, Riley comes downstairs, slowly, like always. From my chair in the living room, from the place where I sit still dark and curled, I can hear the fall of her feet. Her knees crack, an inherited weakness, as she plants herself on each step, and for a moment I […]

In the garage, on the way in at the end of a bruised up day, Riley has another seizure.  Kevin, coming around the other side of the car, sees her stop, notices her sudden silence.  He calls her name, and she turns her head but can’t answer. Stuck, her head bobs, like something sinister has […]

We sit, Kevin and I, on metal locker room benches dotted with holes, our bodies carefully sandwiched between a woman in a kerchief–silver-gray hair slipping out at the edges, and a herd of boys climbing over their mother. Mom smiles weakly when we say hello, studying the numbered slip in her fingers while one of […]

My friend and I, we walk, and I tell her about Riley’s last seizure, the words tumbling from my mouth in a rush. The story’s only hours old; it happened the night before, so this is how I’m doing. My friend listens intently, nodding a little in encouragement when I look at her, gasping in […]

“I don’t know what to say,” Riley says, something very likely often true, only now, while my knees carve moons in the carpet beside her bed, she feels vulnerable enough to admit it. I smooth Riley’s hair with my hand, playing with the tiny, curling strands about her ears, thinking that the only thing she […]

Impatiently, I refresh the screen, tapping my foot, jiggling the mouse with my hand. Come on, come on, come on. A few days ago, I sent Riley’s doctor a message on the patient portal, a few questions about upcoming labs and potential patterns. Sometimes parenting a child with epilepsy, especially while adjusting meds, feels like […]

“I’m gonna cry,” Riley says, just as her voice begins to break. A bewildered sigh escapes, and she absently touches her own cheek, as though to catch tears that haven’t yet dripped. She has just begun to tell our small group what happened to her, about the seizure that took her from school to the […]