Here we sit, Josh’s mom–my friend Camille–and me, two sisters, on a velvet sofa in a coffee shop called Lucky Tree, twisting cups in our open hands, talking, as mothers do, of life-giving. Oddly, it strikes me that when we get up and leave this place, an impression of our bodies will remain, lightening the […]

On the Fridays when Josh spends the day with us, Riley, Josh, and I have conversations about what they’ll do for each other in-case-of-seizure.  They sit at the bar, our couple, their fingers interlaced, while I stand in front of them at the kitchen sink, my hands preoccupied with washing. “Now Josh,” I begin.  He […]

In our house, we have learned to keep time this way, in days since the last seizure, but this is not something we carry along, not at all like some battered suitcase stuffed with all our worries and dragged along behind, but rather something acknowledged and touched by our hands and burned in the pasture, […]

I run my finger over the scars on the dresser in my bedroom, Grandma, twice etched, raw, like an incision in the wood in Riley’s handwriting.  Always in twos. I murmur the dark echo of an old cliché, the shadow of an old joke still half bitter to me, but only by half, because God […]

In the hallway at our neurologist’s office, as Riley and I breeze along behind the medical assistant on the way to an exam room, I realize again how much my daughter has grown up. It’s a flaw of ours as parents, that while we encourage and facilitate growth in our children, we lack proficiency in […]

The curtains open and the music swells, and I imagine flitting, light-winged, across the stage, which looks blue, lit like the sky. I imagine the freedom of soaring, the air wrapping about my waist like a pair of lifting hands. They will soar on wings like eagles, I remember. They will run and not grow […]

Restoration fills our talk of home. Kevin and I never finish the conversation. We watch Riley pause in every doorway whispering some memorized OCD monologue, bending at the waist like a bobblehead doll, and Kevin says to me, “One day, she’s going to fly through doorways.” Adam stumbles over answering a simple question, searches his […]

“It’s so pretty out here,” I say, the words like an exhale. Golden brown leaves skitter across the asphalt, and everywhere I look I see another vibrant shade–the sky, cool blue; the trees, a sunset arch sheltering our pathway. I breathe a prayer, remembering something C.S. Lewis said, something that fits: We do not want […]

Riley can’t respond to me when she’s seizing. She can’t answer my gentle pleas for her to come back, though she tries to turn her head toward me and gets locked there, looking back over her left shoulder, eyes seeing nowhere and then straining beyond even me. I glance at the clock, marking the time, […]

Early, while the sky’s still grey, Riley comes downstairs, slowly, like always. From my chair in the living room, from the place where I sit still dark and curled, I can hear the fall of her feet. Her knees crack, an inherited weakness, as she plants herself on each step, and for a moment I […]