Restoration fills our talk of home. Kevin and I never finish the conversation. We watch Riley pause in every doorway whispering some memorized OCD monologue, bending at the waist like a bobblehead doll, and Kevin says to me, “One day, she’s going to fly through doorways.” Adam stumbles over answering a simple question, searches his […]

“It’s so pretty out here,” I say, the words like an exhale. Golden brown leaves skitter across the asphalt, and everywhere I look I see another vibrant shade–the sky, cool blue; the trees, a sunset arch sheltering our pathway. I breathe a prayer, remembering something C.S. Lewis said, something that fits: We do not want […]

When Riley cries, she turns red, as though her whole body must make up for any failure to express herself clearly in words. This morning as we walk to the car, her eyes, which were already rimmed an angry color, look pink from the press of her palms as she rubs away her tears. The […]

“So for some reason, this verse made me think of you,” my friend says, flicking her finger back and forth on the edge of an index card as we settle onto her porch beneath warm party lights glowing in the cloudy afternoon and ferns gently swaying. I cradle the coffee cup in my hands and […]

“Mom?” Riley reaches into the cabinet to my right, rising up on her toes behind me, leaning like a shoot. I wash dishes at the sink, my sore hands soothed by the hot water, the soft soap. The bottoms of my feet hurt from standing so long, and at the end of an afternoon spent […]

Early, while the sky’s still grey, Riley comes downstairs, slowly, like always. From my chair in the living room, from the place where I sit still dark and curled, I can hear the fall of her feet. Her knees crack, an inherited weakness, as she plants herself on each step, and for a moment I […]

Upstairs, I fill a basket with the things Riley will need after her shower–hairbrush, deodorant, pajamas. I tap my fingers on plastic, rub them against soft fabric, ticking off items by touch. I consider the warmth of the night air, how Riley turns on the fan even when it’s cool, how particular she will be […]

We sit, Kevin and I, on metal locker room benches dotted with holes, our bodies carefully sandwiched between a woman in a kerchief–silver-gray hair slipping out at the edges, and a herd of boys climbing over their mother. Mom smiles weakly when we say hello, studying the numbered slip in her fingers while one of […]

“I don’t know what to say,” Riley says, something very likely often true, only now, while my knees carve moons in the carpet beside her bed, she feels vulnerable enough to admit it. I smooth Riley’s hair with my hand, playing with the tiny, curling strands about her ears, thinking that the only thing she […]

Impatiently, I refresh the screen, tapping my foot, jiggling the mouse with my hand. Come on, come on, come on. A few days ago, I sent Riley’s doctor a message on the patient portal, a few questions about upcoming labs and potential patterns. Sometimes parenting a child with epilepsy, especially while adjusting meds, feels like […]