Here we sit, Josh’s mom–my friend Camille–and me, two sisters, on a velvet sofa in a coffee shop called Lucky Tree, twisting cups in our open hands, talking, as mothers do, of life-giving. Oddly, it strikes me that when we get up and leave this place, an impression of our bodies will remain, lightening the […]

“Riley, before I met you, I was all alone,” Josh says gently, his voice a quiet trumpet. He stands in the middle of our Baltimore hotel room, gesturing toward her with one hand clawed around a balled-up t-shirt.  The thought has made him pause in his packing, as though it must be acknowledged before he […]

All I ask, Riley sitting beside me at the bar in the kitchen for lunch, us with our bright-fresh salads, glint of forks, napkins folded in neat rectangles, is, do you want to say the prayer? Umm, that’s okay, she says, I’m good, and then, her voice wavers, and her eyes suddenly fill with tears. […]

On the Fridays when Josh spends the day with us, Riley, Josh, and I have conversations about what they’ll do for each other in-case-of-seizure.  They sit at the bar, our couple, their fingers interlaced, while I stand in front of them at the kitchen sink, my hands preoccupied with washing. “Now Josh,” I begin.  He […]

I pray with Riley at night. After she brushes her teeth, she comes to get me, shows up beside my bed like she used to as a child, and I lay aside my book and pull my body back out of bed and slow step my way across the hall to her room.  Sometimes I […]

In our house, we have learned to keep time this way, in days since the last seizure, but this is not something we carry along, not at all like some battered suitcase stuffed with all our worries and dragged along behind, but rather something acknowledged and touched by our hands and burned in the pasture, […]

I run my finger over the scars on the dresser in my bedroom, Grandma, twice etched, raw, like an incision in the wood in Riley’s handwriting.  Always in twos. I murmur the dark echo of an old cliché, the shadow of an old joke still half bitter to me, but only by half, because God […]

In the hallway at our neurologist’s office, as Riley and I breeze along behind the medical assistant on the way to an exam room, I realize again how much my daughter has grown up. It’s a flaw of ours as parents, that while we encourage and facilitate growth in our children, we lack proficiency in […]

The curtains open and the music swells, and I imagine flitting, light-winged, across the stage, which looks blue, lit like the sky. I imagine the freedom of soaring, the air wrapping about my waist like a pair of lifting hands. They will soar on wings like eagles, I remember. They will run and not grow […]

Restoration fills our talk of home. Kevin and I never finish the conversation. We watch Riley pause in every doorway whispering some memorized OCD monologue, bending at the waist like a bobblehead doll, and Kevin says to me, “One day, she’s going to fly through doorways.” Adam stumbles over answering a simple question, searches his […]