Riley and I sit against the foot board of the guest room bed, Shaker planks pressing into our backs. “How long will the tornado warning last?” She asks me, looking over at my phone, the radar map I’m scrolling. I stare at the blobs of color–red, yellow, green, spreading them bigger with my fingers to […]

“You need to get with it,” I say to Riley, like I do nearly a dozen times a day, then I jot down the phrase. Get with it. I taste the words a little, stare down at the shape of them, the jerking movement of the letters. Kirk Byron Jones has me watching my language […]

We sit, Kevin and I, on metal locker room benches dotted with holes, our bodies carefully sandwiched between a woman in a kerchief–silver-gray hair slipping out at the edges, and a herd of boys climbing over their mother. Mom smiles weakly when we say hello, studying the numbered slip in her fingers while one of […]

Kevin walks into the living room, where the morning light turns golden and Adam’s music makes a mini city of silver disc towers in front of the stereo. The room swells with harmonies. Adam roams, a lanky builder carefully settling one more disc atop one pile and then turning to lift a disc from another. […]

I remember sitting at a too short Formica table, overflowing a child-sized chair, in the play area where a couple of bright, shiny women evaluated my then two-year-old Riley. Riley, distractedly pushing platinum corkscrew curls away from her eyes, lined chunky animals along a busy, primary carpet in a long, snaking line. It looked like […]

“I don’t know what to say,” Riley says, something very likely often true, only now, while my knees carve moons in the carpet beside her bed, she feels vulnerable enough to admit it. I smooth Riley’s hair with my hand, playing with the tiny, curling strands about her ears, thinking that the only thing she […]

Sometimes, I worry my prayers. I squint hard, stumbling over what to say. “I have no words,” I mutter. I take notes, not wanting to forget what I meant to mention. I worry about the public articulation of my need, how I’ll sound. I forget who hears me. Maybe, I misunderstand what He knows already. […]

Fresh morning and the coffee steams; my pen scrolls over a page in my journal. Out on the porch, by flickering candlelight and the dim glow of twinkle lights, I list gifts–morning stillness, early light, sleep-rumpled skin, a bed piled high with quilts—while the birds sing. Those birds, they’re only this loud at dawn. I […]

“What else I can do to help?” Riley asks again for maybe the sixth time, hands on her hips, that grin stretching wide. Riley loves to help. She asks this of my so-beautiful friend, who stands hot-cheeked and fingering a hasty ponytail, assessing an assortment of baskets heaped with supplies, a row of folding tables […]

Impatiently, I refresh the screen, tapping my foot, jiggling the mouse with my hand. Come on, come on, come on. A few days ago, I sent Riley’s doctor a message on the patient portal, a few questions about upcoming labs and potential patterns. Sometimes parenting a child with epilepsy, especially while adjusting meds, feels like […]